That one time Saturday Night Live was super un-PC and it worked…

I have no idea how to work our TV…so I have to ask my children to leave it on every Saturday evening so I can watch Saturday Night Live.  I often wonder if I watch it because it is the only time I don’t have someone whining at me that its their turn.  Last night between forcing my eyes to stay open and shoving a handful of popcorn in my mouth SNL aired this skit:

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This is a satire or maybe even a spoof of something that goes on all the time and SNL nails it.  Hear me out on this one….

About a month ago, before this Trump thing just kept getting more and more serious, I read the yuckiest headline ever…

UNDEFEATED WRESTLER LOSES TO RIVAL WITH SPECIAL NEEDS, MAKES HIS DREAMS COME TRUE.

You can read the article here: (http://www.insideedition.com/headlines/14311-undefeated-wrestler-loses-to-rival-with-special-needs-makes-his-dreams-come-true).

Once I moved through being perplexed  why a star wrestling champion would have a life long goal of losing to someone with special needs I realized what it really said.  Which was equally as perplexing and disturbing.

Since this has been so fresh on my mind recently I wondered….is the problem more about douchy people who want attention for being  decent human beings or is the problem more a media and journalism issue?  I pondered this just a bit last week as well when I blogged about Donna, an unsuspecting fast food worker who treated my child with a severe language disorder and autism just like any other patron. In our case Donna is completely unsuspecting that so many people now know and respect her because of her act….and it truly was an act that occurs  far less in our world than one might think. (https://runningthroughwater.com/2016/02/26/random-acts-of-dignity/).  The sensationalizing of reporting overly heroic gestures to include those with special needs is a reflection of our world.  Hollow good deeds and instantaneous 15 minutes of fame is raising the wrong kind of awareness folks…but it sure makes people feel good and it garners thousands of clicks.

Please…do not misunderstand.  Us parents are caught up in a catch-22 vortex.  Watching A2 join in to a neighborhood kickball game only to see the 9 year old neighbor run just slightly slower to retrieve the ball as A2 runs to his base is amazing.  But he DOES run to get the ball and he has gotten A2 out sometimes. The difference is that its not a one time thing.  A2 can be told “see you tomorrow” as an invitation to join in again.  And that 9 year old isn’t walking around to his friends saying “wasn’t that so nice of me?”…at least not in front of A2 or the rest of the world to be overheard turning a regular experience into a charitable yet humiliating one.  I love the idea of having my little guy being an equal part of the game….I even love the idea of the kind gesture of a child making him feel special during that game….I don’t like the idea of him being seen as a charity or a headline because of it.

And that is all.  Thank you Saturday Night Live and Jonah Hill for showing how ridiculous that is.  Go Tigers.

#SNL, #JonahHill

 

 

Day 4. D is for Details

Day 4

In grad school I learned this neat little thing called a ecomap…and then saw another mom post a personal one in a blog. A year ago, I decided to make one for the kids (for sake of privacy, a fourth of this map is not shown) For us, that means 37 total IEP objectives and 19 ISP service areas to track, 44 providers, 12 clinics and 6 agencies we are in regular contact. All before work and caregiving. When you meet a parent of a child with special needs–and if you run into them somewhere and they don’t seem to recognize you….or you already know one who seems extra high strung or flighty or snarky….well….cut them a little slack. Not everyone is built to keep this much in their head all the time.

Day 3 2015. C is for Coping

Day 3

In the most typical of situations sibling issues exist. For sibs of those with significant impairment, these kids are often the invisible bystanders. Their issues and needs sometimes take backseat to the immediacy and reality of their sibling with Autism needs. We ask them to deal with leaving fun events earlier than they would like, let embarrassing situations roll off their backs and stifle disappointment. The rate of having more than one child with neuro diversity is high. Sometimes, the less impaired child is asked to cope and step up in ways that would challenge even the most typical and mature of children.