Autism’s Lost Text Message

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One night as I was plugging in my son’s iPad, I noticed he got a text.  Many parents lose sleep over whether or not to invade their preadolescent’s privacy by looking at personal messages, but not me.  My child at 11 years old is completely illiterate and he had never gotten a text before.

I glanced around as if nervously waiting to get busted for reading it, but the truth was my stomach was in butterflies out of joy and excitement.

Hi A2.  This is Ryder

Are you in bed?????

If you aren’t what time do you go to bed???

Maybe I have been wrong!  Maybe school has been helping him truly cultivate and explore friendships after all! Real ones!  A2’s class picture was on the refrigerator and I ran to it to ask him which one was Ryder. I recognized several of the boys in his class but didn’t know anyone named Ryder. Unfortunately, my son has a severe language disorder called Childhood Apraxia of Speech in addition to Autism so I had no way of knowing for certain which one Ryder was because A2 enthusiastically would answer “yeh!” to every child I pointed to.

Could he be a child from the resource room?   I could not know that either because  the school will not tell me the names of any of the children in that room due to “privacy”.  The kids with whom he spends the majority of the day.  The kids who also probably never get or send texts or receive invites to play. The kids who can’t just ask each other and then come home and tell their moms.

My husband and I were feeling almost hypervigilant over where we would know this child from since the area code was from a city we lived in many years ago.  A2’s real name is an unusual one, so clearly this is meant for him.

How did he get A2’s number since A2 doesn’t even know it?  Does this child comprehend that A2 can’t read? Could this be an adult?  A teacher?  A predator?!

My joy was quickly turning to irrationality as my husband texted back to give this Ryder person a piece of our mind!

As it turns out, Ryder was trying to get in touch with A2.  Just not MY A2. 

Ryder was in 6th grade and had just moved and had met a new friend at his new school (not ours) that day, exchanged numbers and did what every 12 year old does when making new friends.

A2 was contacted by a ghost. An illusion of a promise of the world to come.

The coincidence lacked the sparkle of serendipity and sent a gut punch that made the butterflies swirling in my tummy fly out of my mouth and away into the sky out of reach.  One three lined text of 19 words, 57 characters, 6 question marks and 2 happy face emojis sent me into a 10 minute emotional tailspin ending in a disappointment.

While my reaction may seem dramatic and my sweet boy was oblivious, man alive, I know he would have LOVED for that text to be his if he knew. You see, that would mean someone wanted to tell him that they got a new skin in Minecraft, or ask him if he wanted to ride bikes to the park or see if he’s allowed to see that Jason Bourne movie. It would mean that someone might be sneaking him a You Tube video he isn’t allowed to watch at home or asking him if he thought the new girl was cute.

It would mean that someone was thinking of him right at that very moment. It would mean he had value to people other than me and his dad.  It would mean he was growing up.

Before this whole parent thing came along and made me loopy with worry, I used to help families move their loved ones into nursing homes. One particular instance, I helped take inventory of a man’s belongings and I asked him to give me his wallet so I could start a resident account for him to keep his $10 bill safe. He refused and his wife asked to speak privately with me in the hall.

“I know he has no need for money here, but is there any way you can make an exception to let him keep it with him?”

I’m certain I did not handle the situation with sensitivity or understanding because she replied, ” We were never wealthy people but he was proud of the fact he always put food on the table or could hand his sons money when they needed something. That money in his pocket makes him feel like a man. And that, child, is all he has left to feel like one.”.

I let him keep the money and have contemplated since then what the last material thing I would hold on to would be and why.

I just didn’t realize that it would come earlier in life and be a random text message that was not meant for my child.

These things.  These little things that give us a perceived sense of value–that we anchor to other things and make them into something more.  Ultimately, the text itself was probably meaningless to A2.  He however does very much care about all those things that receiving a text implies.

Having a way to communicate with the world makes you a part of it and a rolling digital scroll of blue and white messages are like the receipt to prove it nowadays.  My friend’s daughter left her phone at home while she was at overnight camp and powered up when she returned home to 1022 unread text messages. I never did ask if she read them all.

I do know that A2 will never experience the betrayal that can come with adolescent friendships and are exacerbated by text messages.  No girlfriend break up text.  No secret texts between friends who are standing right there with him, exploiting his trust.  No anxiety over the three dots or “read” receipt.

No.  None of that.

While I am disappointed that Ryder misdialed and reached out to the wrong A2, just for a moment I thought about grounding A2 from his device because he knows he shouldn’t be texting so late.

I would rather___________ than go to curriculum night.

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Many years ago when A2 entered the public school system, we moved him from a private school with a peer program and an ABA focus.  He is so influenced by his peers we thought maybe it would be a good time to bring him back to our school district while he was so young.  It was no small decision and perhaps ultimately made under the haze of Xanax. 

I waltzed into school on curriculum night, notebook in hand, mascara and lipstick reapplied. I waved and smiled at other parents I recognized from the neighborhood. We chatted about the end of summer homeowners association picnic and how nice the tennis court was looking now that they repainted it and we absolutely should get together for tapas sometime (how has that not even happened yet?!)

The desks were so small and facing each other.  Tidy containers of crayons divided by color, posters on every square inch of wall space, shelves that housed bin after bin of books. Mobiles hung from the ceiling.  Not at all what his ABA classroom looked like…way too much to distract..but it was all good.  He will learn to adapt to this no problem. The neighborhood kids are all here!  Someone took the time to take all the crayons out of the boxes!  

I found A2’s desk and it had a paper name plate with cartoon pictures of pencils and school buses just like everyone else. 

There was an envelope on his desk with all the “getting to know your child” papers like everyone else

There was a tidy blue folder with the agenda for the evening waiting for us just like everyone else

Sure, my mother hips were hanging over both sides of the tiny chair. And sure, the middle aged teacher greeted us and held her gaze with my husband much longer than she did with me, but that’s what we do here in public school!

Normal, regular people stuff. 

Then the teacher started talking.  And talking.  And asking us to turn pages in our packets.  And telling us what our kids can already do walking in the door on the first day and where we could expect them to be when they walk out on the last. 

The road map to get there sure as hell was not the road map to get to Italy or even Holland for A2.  Nope. Flyby right over Europe to the heart of Syria (which I hear is really, really nice this time of year….really nice. Hot.  But it’s a dry heat.).

I did not see the person who punched me in the stomach. I didn’t even know that a sucker punch was possible in a mainstream classroom. Before I could find out if a bitchslap was next, I gathered my things and walked out.  That teacher never did follow up with me to find out why I left, or if I was ok or if my husband liked her new back-to-school-sleeveless-blouse. 

A2’s intervention specialist saw me in the hall and gently said “..come with me to the resource room where he is a rock star. I’ll show you around.”  She meant well, but he could be a rock star at his other school. 

I decided right then that the only way I would ever cope in another curriculum night was if I could sit at one of those tiny desks with a Big Mac and a bottle of Stoli while listening to other parents ask questions like, “What if my child is above the standard for reading?”  or complaining at the lack of computers in a room he won’t actually get to be in. I might be able to get away with the Big Mac, but the vodka would probably be  frowned upon at the administrative level.

Don’t misunderstand…my boy is perfect in most ways to me (sometimes he is a bit of an asshole…no one is 100%) I don’t fit a mold and when I realized I was going to be a mom 13 years ago, I had no expectations my kids would either.  I embrace the weird and inappropriate and many days it takes all of my will to push my monkey brain back into it’s cage before it starts flinging poo. 

I’m ok with all that

What is hard is that the rest of the world generally is not. 

While he gets the desk and cubby just like everyone else, he doesn’t get to have sleep overs, or bathroom privacy or even a way to ask  other kids if they will Facetime or text him later. 

Due to “confidentiality” the helpers assigned to him are not allowed to tell me the names of the kids he would probably want to ask anyway. 

He doesn’t get detention for talking out of turn or showing up to class late. 

He doesn’t trade carrots for cookies with the kids at lunch.

The bins of books must still be read to him and doesn’t get excited when he hears about the release of the newest Harry Potter book. 

And curriculum night?  Well…all those things are written in the blank spaces between the lines on the syllabus.  The syllabus that is only visible to certain parents.  Not just like everyone else.

The tiny desk is like a mirage.  Those things don’t happen because those are not the things that are important to the people who spend 7 hours a day with him.  Goals are set to reflect the things A2 CAN’T do rather than what he CAN, whereas the curriculum for the rest of his peers are focused on what they WILL do.  And not just at 80% accuracy in 4 out of 5 observed opportunities.  I spend my life cherishing the tiny accomplishments inching along unseen by the naked eye or letting hurtful comments roll of my back like water off goosefeather by people who meant no harm. I can sit through all of that, but it reminds me my child is lonely. 

And I won’t sit through that. 

So tonite, the very last curriculum night of elementary school for me ever….like a pro,  I went in, signed my name on the volunteer list, eyeballed the room of parents , took 2 tums to settle my stomach in anticipation of the Big Mac in my mom-bag and walked out.

The bottom line is I would rather have heartburn and a hangover than go to curriculum night.  What would you rather do?

At The End Of The Day….

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There are some days that my heart breaks selfishly a bit.

Days like today.

As A2 gets older there really are no more play dates. While kids are generally kind, there are limits to their patience. It’s hard to figure out how to play with another kid who wants to stand at the bottom of the water slide flapping rather than going down. His peers are now preteens and the adults that are close by interpreting for him, ensuring safety and cuing socially reciprocal behavior are going to inhibit his peers age appropriate wing stretching.

Today, as I sat entering in my second hour in direct sun making sure my guy didn’t keep going past the “do not pass” sign at the base of the water slide, I couldn’t help but notice the world around us. I had nothing else to do but try to clear my mind of things that poke at my side and wake me breathless in the middle of the night that were now tugging at the straps of my mom-suit on sunburned shoulders. I see the young women in their bikinis, laughing and hanging off of tattooed boyfriends and remembered a time where wondering if my thighs were firm enough or if my mascara was running were my biggest concerns. And at the time they really did feel like big concerns.

There are days….just like every other chubby middle aged mom, I just miss my youth.

I watch other moms read their books and drink stealthy mojitos next to the pool as their kids run to them at rest time asking for a hot pretzel. The lifeguards are there to protect theirs while I stand knee deep in freezing water wondering what would happen if I tried to do the same.

There are days….like every other mom of little ones, I wish I could lounge near a pool instead of  being on high alert waiting to save my kid from drowning.

I see the moms with wee-ones on changing tables and laugh as I remember being in the same predicament with a wet, slippery cherub in a soaking wet swimmy full of poop and trying to carefully slide it down over a squirmy tushy, not realizing the sides rip off for easy disposal. Today I am trying to find a dry floor free of clumpy toilet paper wads since my guy is now too old to place on a changing table.

There are days….like every mom of little ones, I just wish we were out of the diaper stage.

Once I shook the delirium of the midday sun and made my own mojito at home I felt less like I was crawling toward a mirage in the desert only to be disappointed by more sand.

I feel conflicted by my own selfishness.

I know the bottom line is if he is still oblivious to his differences and is still filled with joy doing what he likes to do whether it suits me or not, then we are still golden. And yet I can feel like I have received a sucker punch to the gut when I watch pubescent girls walk quickly in cliques past him whispering and giggling. I don’t know if my child worries about the same things I do or if he has crushes on girls or if he sometimes grieves his differences. I hope not. That way I can keep my selfishness where it belongs…to myself.

But here’s the thing.

Don’t ALL moms go through this? 

We have a sacred ground that feels like it is being broken if we say it out loud or admit to having a bad mom day.  Special Needs bad mom days and Typical bad mom days have a different script but definitely the same plot.

  • No.  I will never worry about my kid having a psycho girlfriend.
  • I will never worry about my child’s heartbreak of  being socially brushed off because he is wearing the wrong logo on his sneakers.
  • I will never worry that I did not raise him with morals or respect for adults.
  •  I will never worry about whether or not weed will be his gateway drug to heroin.

Those things are equally as important even though there are days I would rather worry about those things. Somehow it became not OK to admit to worry or heartbreak or disappointment for fear of being seen that we somehow don’t appreciate our children. I hesitate to share on these days I must sit quietly for a little too long and think about things a little too much. I am weary of feeling somehow missing our old lives or having a twinge of disappointment over “what could have been” cannot possibly coexist with loving our children with all our souls or appreciating their uniqueness in all their flappy, pool water drinking ways.

See…because you know what I miss too some days? My flat stomach with a belly ring that didn’t look like it was a way to deflate my abdomen. I miss not checking moles and worrying about skin cancer. I miss not having to hire a crane to hoist my chest up in a bathing suit. I miss drinking beer all afternoon in the sun and flirting. I miss working full time and then actually being bored in the evening when I couldn’t find someone to go to the coffeehouse to see some local guy playing acoustic.  And I dare anyone reading this to NOT feel like they miss those things too sometimes and that they too would consider trading their situation in to go back for just one day only to realize there would be no way in hell.  Because we will never be the same and for that the world will never be the same. This is the backward legacy that our kids give to us….as we gave to our parents.

I often wonder what kind of mom I would be in an alternate universe….and feel very selfish on the sad days. But ultimately, autism or not, I really don’t think I’m so much different from any other mom.

The Mending Wall

IMG_6047These wildflowers grow on a narrow strip of grass between someone’s property up against a century old stone wall and a city sidewalk near my home. There is a handwritten sign on a stake stating simply PLEASE DO NOT MOW OR SPRAY WILDFLOWERS. THANK YOU. While seeing them in full bloom one might wonder why someone would do that even when instructed to.

Today we were shaken again to our core. Today we were reminded again that nothing should be taken for granted. I am angry that again I feel afraid for my children when they leave the comforts of home.  I am conflicted because A2 is sick and at a time I should be saddened for 50 families and frightened at the fact that laws continue to exist that allow for permits for individuals to decide the fate of 50 people in one rain shower of shots. People who were given the right to exist with equal love are gone and we are all reminded there is still an opposing view.  But A2 is the kind of sick that makes his father talk in circles and makes me stone faced and logical. The kind of sick that sinks our instinctual fears as parents until the wind kicks up again and fills our sails to let us know it’s smooth waters soon. I can’t fear all things at the same time.

So I can stop to show you these flowers I saw today. And you can stop to see them. And we can all appreciate that someone stepped up to make sure that they bloomed to their full beauty for all of us. Please see them. Just for this moment. ‪#‎onepulse‬  

On the Eve of Your 11th year…..

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Your brother saw the ocean for the first time about a month before we knew you.  The expanse stopped him in his tracks leaving him silent and still.  The moment you were born 11 years ago today you cried and screamed and when they held you up for me to see I instinctively whispered your name.  You stopped crying, found my eyes  and you were silent and still and you took my breath away.  Your presence in our lives has been like seeing the ocean for the first time–beautiful and tumultuous and every day is like seeing the world in a way no one else gets to.  I feel lucky I get to be your mom.  Happy Birthday sweet A2…….

The Gorilla in the Room…..

There have been so many news stories, articles and commentary on social media about the tragic situation over the weekend that at this point I am fairly sure you would have to live in a cave to not have at least heard about it.  In case you do live in a cave, here is what I know about the situation with the little boy who fell in the Gorilla exhibit in Cincinnati:

  • He fell 10 feet into the moat
  • He fell 12 feet into the moat
  • He fell 15 feet into the moat
  • He was seriously injured but with non-life threatening injuries
  • He came out without a scratch
  • The gorilla rushed him but did not hit him
  • The gorilla approached him cautiously only after hearing him splash in the water
  • The gorilla did not intend harm, he almost seemed to be protecting the boy
  • The gorilla violently was dragging and throwing the boy in the water
  • It took 10 minutes before anything was done by rescue team
  • It took 15 minutes before anything was done by the rescue team
  • The boy had his hand in his mother’s back pocket to stay close and in a flash he was gone
  • The boy’s father crawled out onto the ledge to jump down into the moat
  • The person who filmed the footage crawled out onto the ledge to jump down into the moat
  • Eyewitnesses say she was on her phone and not paying attention until they saw him in the water
  • Eyewitnesses say the boy was gone in an instant and he was seen crawling out onto the ledge and was pursued immediately by family and spectators alike

From reading up….here is what else I know:

  • Jungle Jack Hanna supported the zoo’s choice to kill the gorilla because there was no other realistic option
  • A large part of the community did not support the choice to kill the gorilla and sees the tragedy of killing an innocent endangered animal because there were other options
  • A large part of the community ponders how in the world the zoo could have such an unsecured area that a child could breach it that quickly
  • PETA did not support the choice to kill the gorilla OR have him in captivity in the first place for our entertainment
  • A child slipping away from a parent can happen to anyone in an instant
  • The mother is completely responsible for the death of that gorilla, is a neglectful parent and clearly was not watching her child and should have him removed from her care to be raised in foster care.
  • The mother has received several death threats
  • A gorilla is dead and a boy  is alive

And lastly….here is what else I know:

  • A 4 year old boy is alive
  • NOTHING.  ULTIMATELY, I KNOW NOTHING.  AND NEITHER DO YOU.

Yes, its a tragedy no matter what.

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Not gorillas…..I know….but I own the image.

 

 

 

 

 

It’s Not Your Mother’s Mother’s Day

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To my children on Mother’s Day:

You did not ask to be born.  You did not ask to walk this earth and you certainly did not create your own realities and struggles….at least not yet.  You did not get to choose me as a mother.  I can guide you in ways that I think will ease your journey but ultimately your external successes and failures will be YOUR successes and failures.  You get to have those on your own and I will rejoice and celebrate and swell with pride as if I created those monumental moments but I do not get to take credit for those.  I will feel guilt or shame or sadness in your failings or perhaps I will distance myself from them for those same reasons, but ultimately I don’t get to take credit for those either.   Whatever respect or love you have for me through each stage of your lives is created, taught and fueled by me and  while those things feel like an expectation when it comes to a mother, in every other situation those things are earned….I will assure you it is the same in our case. It is not my expectation that you celebrate me today.  If anything, the onus is on me to celebrate you.  You made me a mother and by proxy after 35  years I was given the gift of the ability to feel love unconditionally.  I don’t choose to love you…..I have no choice.  What I do with that part is up to me. You do not owe me for being attentive to your needs, by making you a priority.  That is my contract with you regardless of circumstance.

So on this Mother’s Day, I celebrate you both.   The loves of my life.  May you:

–Never feel as if your existence was a burden to me.

–Always feel like a joyful priority, even when I have forgotten to appreciate that myself

–Recognize that you are separate from me….that my sadness is not your sadness…my expectations should not be your expectations, my disappointments are not your disappointments.  If I am doing this right, I will not feel like your obligation.

–Know that in my humanity the above might not feel that way because nothing makes me feel more joy than your joy….nothing makes me feel more worry than your worry…and unfortunately there is not much I can to about that.

–Never feel less because I acknowledge your differences.

–Always feel safe in telling me your thoughts and ideas no matter what.

–Know that when I don’t understand your needs that you may not be able to change that but you can ask me for more patience

–Always feel the love and respect I have for you and I hope that I have done my job in teaching you how to have the wisdom to distinguish and create healthy distance as you grow when others are not treating you with love and respect who should be.  Including me.

–Know that if I am feeling selfish or if I cannot manage something when it comes to you I will protect you from that by being honest so you never misunderstand my intentions.

If I am raising you right, for me every day should feel like the holiday we are told is Mother’s Day.  But for today, I celebrate and thank you for being given the privilege of being your Mom. Now let’s get to the Zoo.

xoxox

 

 

 

Day 21. T is for Teachers and Therapists.

Day 20 2016: T is for Teachers and Therapists

Jaycee Kemp's avatarRunning through Water

Day 20

Day 20:  T is for Teachers and Therapists

97. A2 has had a total of 97 teachers and therapists in his short 9 years. Some were hand- picked….some chosen by fate and luck of the draw. Some were published…lauded recognizable names….some were quiet presences of whom I cannot remember their names. Some have been with us for the majority of his life. Some have only jumped in for a blip of time in his almost 80,000 hours on this planet. Some were stellar….life alterers….some just showed up because they had to. Some interpreted my coolness or seeming indifference to them as being non-caring. Some recognized that I always had my child’s best interest in mind all the time and understood it was important for me not to be too attached for fear of losing perspective and not holding them accountable should his learning derail. All have had a permanent impact…

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Day 18. R is for Relationships

Day 18 2016: R is for Relationships (originally posted 4/2015)

Jaycee Kemp's avatarRunning through Water

Day 18

“Are you sure he has Autism? He’s so friendly…”. While there are more nuanced aspects now to the criteria, failure to develop peer relationships appropriate to developmental level is one of the defining and most obvious diagnostic identification for children with autism. Interest in people in general, desire for friendships and loving behavior can muddy the diagnostic waters and confuse people about what autism is and what autism isn’t. Disconnectedness, aloofness and lack of desire to be touched does not always translate as a lack of desire for relationships. The desire is there, the understanding for how that happens is not. It can just be easier to be by yourself. A1 can tell you that. Indiscriminate friendliness, hugs and kisses to those he loves and the compulsive desire to be around a lot of people doesn’t always coexist with developmentally appropriate social skills. A2 probably would tell you that part…if…

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Day 10 2016:J is for Just Ask

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J is for Just Ask

When I sat down every day last year to do this A-Z project, my biggest take away was the candid responses from friends and acquaintances.  Many of whom told me they wanted to reach out, but didn’t know what questions were ok to ask.

I understand that on a few levels:

  1.  As an inhabitant of this earth, when we see something we don’t understand or is different, we feel compelled to want to know the “why” or the “what happened”. Perhaps its part of the survival instinct-  A primitive way to avoid something that is contagious or preventable.  So, often times when it’s not thought about and someone approaches me and says, “what’s wrong with him?”, my instinct is to say back, “rude people are what’s wrong with him”. When I shift my schema and recognize that even in those awkward moments there is the possibility to make it teachable, I can have a lot more empathy for the individual asking.  After all, I am not sure I am that much more comfortable with a stranger asking me a more direct question either. (ie: “why is he making that hooting noise over and over?”when really I might have absolutely no f-ing idea myself in the moment but I would very much like it to stop).  Parents–whether we like it or not, we are the conduit to bridging our children with this society Many of us are their voices. Even if one person out of 10 who ask are asking to be nosy or rude, if we do not respond as an advocate, we make the assumption that all people who ask in that way are being nosy or rude.  So, instead of “mind your own business” or “whats it to you”, maybe try, “I think what you meant to ask is that you notice that he can’t talk.  This is his speech generating device, would you like to see how it works?” or “My child can understand everything you say and the way you asked that in front of him makes me uncomfortable.  There is nothing wrong, but it seems like there is an aspect of his behavior that you would like to know more about.  He has Autism and maybe one of us can tell you more”.  Pollyanna much?  Sure, but the only way we will change the asker’s behavior is by gently alerting them to the problem, offering a solution and giving them a reality check.
  2. On occasion, people want to ask how they can help. More times than that, people don’t realize we need help.  For those of us who have kiddos who don’t have a obvious trouble in the community, we move along to normalize our experiences. I have been told that I give off the air of having everything under control and that I don’t need anything.  Part of this is for my kids benefit. No one wants a hot mess of a mom in public.  Another part of this is because as my job as a therapist in this close-knit community, I feel like I need to maintain a balance of vulnerability and strength. The hot mess part needs to ride in the back seat to ask “are we there yet?”.  There are other parents whose kids CANNOT safely be in public places.  So, you just don’t see those people.  Their life behind closed doors is like an invisibility cloak and they are not getting asked what they need for those reasons.  Frankly, many of us have NO IDEA what to tell you about how you can help. My family comes infrequently enough, that to dole out a honey-do list also requires having to walk them through where things are, etc. Ultimately, this means more work.  If there were an emergency, they are not enough of a trained listener to know what my child needs if he tells them.  When a friend asks if they can watch my kids so we can get out…well, I still haven’t figured out exactly how one explains that you can’t imagine asking them to change a 10 year old’s diaper ….or telling them they probably won’t get to sleep through the night and must keep one eye open when they are sleeping.  Sometimes people ask to help but they just don’t want to do what you do need. Their perception becomes that you are unreasonable. It is your own fault you are not taking their help.  All can serve as barriers to asking the right questions or giving the right answers for assistance.
  3. People make assumptions instead of asking at all.  Just the other night, a young woman I work with asked me for advice in a situation about a member of her not-for-profit youth group. This teenage girl has Autism and when the entire group is together she tends to get very dramatic and will end her tirade by running out of the room.  This young woman sighed and said, “She only does it in big groups. Obviously attention….we are thinking of ways to let her know that maybe this group isn’t a good fit for her. It’s not-for-profit, so we can’t tell her she can’t be part of it.” We discussed the fact that perhaps they were misreading the function of the girl’s behavior.  The consequence is what sustains the behavior– if no one is rushing out after her, what is the likelihood that this behavior is to get attention and not escape or something internal due to the stress of being in a large group?   She wondered aloud if they should contact the girl’s mother to try to figure it out.  I wondered aloud what would happen if they just asked the girl herself, since she is her own expert.  Use the time and energy to find out what she needs to be a part of the group in a way that works for her rather than using that energy to figure out a way to help her move on.  We cannot help but to look at others using our own lenses.  But sometimes our lenses are smudged, are rose colored or even broken.  By not asking in this kind of situation, others assume they know what is best.

Lets face it. It’s uncomfortable to ask about people who are different than we are. 

We may be curious, afraid of coming off as rude or misread other’s cues.  We may not want to know the answer, we may not want to change our own ways.  We may already have assumptions and think we are right, we may be uncomfortable due to our own scripts about social norms, or frankly, some of us…we may just not care. 

For those of us being asked, we may be offended, we may be hurt, we may not want to talk about it.  We may not know the answer, we may not want to admit to an issue or call attention to it or we may not want to be reminded.  We may not want to be rejected. 

So let’s all agree on something. Asking and telling can suck at the outset.  Let’s move past it.

Those of us who are Autism Families…we ARE the awareness. How you choose to let that manifest is up to you.  In my world, however, if you ask me, I promise to tell you.